Lorenzo Odone Dies of ALD Disease
Lorenzo Odone was 30 years old and lived in Washington. Twenty five years ago he was diagnosed with an incurable disease and given less than two years to live. Lorenzo Odone, whose parents' battle to save him from a nerve disease was the subject of the movie "Lorenzo's Oil," died on Friday. He was 30.
At 5, Lorenzo was found to have adrenoleukodystrophy, a rare hereditary children's disease. He was given only a few years to live.
Augusto Odone and his wife, Michaela, formulated a blend of erucic and oleic acids found in cooking oils that they said helped their son fight the disease.
A study published in 2005 said that the oil might delay the disease in boys in which it had not yet caused symptoms.
In the 1992 film, Susan Sarandon and Nick Nolte portrayed Lorenzo's parents. Ms. Odone died of lung cancer in 2000.
Statement from the Myelin Project
IT IS WITH GREAT SADNESS THAT WE ANNOUNCE THAT LORENZO ODONE PASSED AWAY MAY 30, 2008, IN HIS SLEEP AT HOME IN FAIRFAX, VA. WITH BOTH HIS FATHER AUGUSTO AND HIS LIFE LONG FRIEND OMOURI HASSANE AT HIS SIDE.
WHAT IS MYELIN?
It is with great sadness that we announce that Lorenzon Odone