Does the Gluten Free - Casein Free Diet Have a Place in the Autism Community?

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Jun 2 2014 - 12:43pm
Gluten Free Food

Surely we have all heard of using a Gluten Free Diet (GF), or Gluten Free - Casein Free Diet (GFCF) for Celiac Disease (CD). It is a must for people with it. Ingesting Gluten for an individual who has CD can actually become very painful. How many people have heard of using a GFCF diets for autistic children?

This diet started as something rarely heard of or used and has turned into a wide-spread, dare I say, fad amongst parents. Many professionals have even begun to refer to this diet as the “Autism Diet” because of how fast it has been adopted by parents without any “real” solid medical evidence of it working in their opinions.

Now, don’t get me wrong, there are a large sum of parents that swear by this diet, not to mention as a mother of an autistic child myself I have learned that sometimes it pays to listen to fellow parents rather than to professionals. However, when it comes to this topic, I personally have not formed any opinions yet. My 10 year old severely autistic son is currently on the Gluten Free Diet and has been on it for several months, yet I remain unsure.

What the GFCF Diet actually is
The Gluten Free - Casein Free Diet Diet is done in two different forms. They either use the standard GFCF rules. This necessitates removing all casein and gluten from your child’s diet. Some parents also opt to just follow a GF Diet with their child. A GF Diet only consists of removing gluten from the child’s diet. Researchers do advise that in children with gastrointestinal issues it is best to stick to a formal GFCF Diet. For further information as to how to follow this diet's guidelines see this story from Mayo Clinic..

The Parental Beliefs of GFCF Diet
The belief amongst parents is that this diet is beneficial because their child has an allergy or a sensitivity to gluten and/or casein, so in turn to the foods which contain them. To be more specific, some believe their child processes the peptides and proteins in foods that have gluten and casein in them differently than others do. They believe that, in theory, the difference in how the autistic child processes the peptides and/or proteins from how others do may in fact exaggerate their child’s autistic symptoms.

To add a little credence to this claim, researchers have, in fact, found irregular levels of peptides in bodily fluids of some people who have autism. Nonetheless, the success of a GFCF diet for autism has not been supported by medical research. A number of parents also believe that their child’s brain treats these proteins like false opiate-like chemicals. In turn the reaction to the chemicals leads their child to act in a certain ways. Some parents even seek out allergy testing to prove the purported allergy in their child. Even after the tests come back and tell them that there is no allergy they tend to still elect to use the Gluten Free - Casein Free Diet diet.

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From using this special diet parents claim they experience improvements in the symptoms of their child’s autism. Such benefits include claims of seeing improvements in:

• Gastrointestinal Issues
• Communication/Speech
• Social Behavior
• Sleep
• Meltdowns
• Maladaptive Behaviors
• Executive Functioning
• Their child is essentially “cured”

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