A fibromyalgia group is petitioning the National Health Service (NHS) in the U.K. for pain therapy changes. The Pifflers United Chronic and Invisible Illnesses Support Community has put together an online petition to modify the current guidelines to better reflect the disorder. The group would also like for clinical trials to be conducted for a potential treatment option.
The Pifflers United Chronic and Invisible Illnesses Support Community wants to gather 25,000 signatures on its online petition. It wants the National Institute for Health & Care Excellence (NICE) to change its rules to reflect the true problems associated with the condition. Pain management is a serious issue that needs to be addressed, and the group feels the NHS should not ignore it.
The petition also includes a section asking for clinical trials to be offered for the ActiPatch. The product uses electromagnetic pulse therapy to fight chronic pain in fibromyalgia. A previous study involving 140 patients who suffered from fibromyalgia found that the patch helped them reduce pain during a trial that lasted for seven days. Now, the Pifflers United Chronic and Invisible Illnesses Support Community wants the patch to be taken more seriously by the National Health Service through more clinical trials.
Fibromyalgia sufferers have been sharing their stories as they sign the petition, and there are common trends emerging from their words. Many of them have faced doctors who did not understand fibromyalgia and have suffered for years with the wrong diagnosis. They also share horror stories of medications and treatments that did not work or made them feel worse. They believe better guidelines from the National Institute for Health & Care Excellence would help by giving medical professionals a better baseline to deal with the disorder. In addition, it would give them an important resource for showing others that the condition is real.
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