Story of Mother with Cancer, Daughter with Autism and Selfless Love
Recently I was given the opportunity to do something that I’ve always wanted to do, to interview parents of children with autism. The parents I met along the road are awe inspiring. These parents are each facing different struggles, with different hopes, different fears, and vastly different stories to tell.
Society thinks that we all walk the same path once our children are diagnosed, that our stories somehow become the same as soon as our child is labeled as autistic. Nothing is further from the truth. Our hope is that the interviews in this series will give some a different view of the parents that raise these children.
Some Background Information
Ms. Cat Maliepaard is a single mother of a 5 year old little girl with autism. They live in Alaska. Cat’s daughter, Kylie, was diagnosed with autism recently. So recently that they do not know what her severity is yet. Cat is a great deal of support and a fountain of knowledge. Cat is a very sweet woman, a very interesting and very sweet woman. Cat was a NCOIC in the army before having Kylie. I, personally, have come to admire Cat a great deal. Cat is raising her daughter all alone, she has no help. Amongst all the chaos associated with a young autistic child Cat found out that she had cancer. This woman defines ‘tough’. She got up, regardless of how she felt or if she had just gotten chemo, and took care of her daughter. She is one of those mom’s that define the word.
Brooke: Let’s start with the basics. What is Kylie’s diagnosis/diagnoses? Severe, Moderate, Mild (or ASD 1, 2, or 3)? Does she have any co-morbids?
Cat: My daughter was diagnosed with just Autism. She was diagnosed with Insomnia and Trichotillomania as her co-morbids.
Brooke: Thank you. Finding out that your child has autism is never easy. If you had to pick one defining emotion you felt when you first heard that Kylie had autism what would you say it was?
Cat: Sadness. I felt sad because I didn’t know if she could ever be happy or how to make her happy.
Brooke: Sorrow is a reasonable emotion.” “Did the doctor(s) diagnose her autism right off or did she go through several misdiagnoses like a lot of parents’ experience?
Cat: When she first stopped talking a general doctor told me I just needed to force myself to talk to her more. I thought I already was. Then just before she turned 2 she was diagnosed with autism.
Brooke: Doctors placing blame, it’s a good example of how difficult autism can be. What has been the hardest part about raising a Kylie? How have you coped with it?
Cat: The hardest part about raising my autistic daughter was doing it by myself. None of my family really understands autism and even my own father said she could talk if she had a better mother. I cope with raising her by using my time wisely. I need to sleep as soon as she does, I don’t need to waste time with family or friends trying to change their mind/views on autism. Some people think they just know everything.
Brooke: I admire you Cat. Autism is hard, doing it as a single mother has to make it much harder. What has raising Kylie taught you the most about yourself?